Imagine if you didn't have a voice. Never having the ability to express what you want, if you are sick, if you are hurt, if you needed help or if you wanted to tell someone about your day. Imagine all the words being in your head and knowing what they mean, having the desire to use those words and then your brain wouldn't let you speak those words.
This is the world my son lives in everyday. He has Childhood Apraxia of Speech(CAS). He cannot talk. He cannot tell me that he loves me or that I am his "mommy". I dream for him to be able to say so many things and to have conversations with me. I even dream that he tells me "No!", asks me "Why?" or even tells me that he "hates" me. I want to hear that voice that is locked up in that head. I hate that his brain has stolen his voice from him and it has robbed us of so many milestones and I want nothing more than for words to come out of his mouth; even if they aren't the nicest words.
We will be getting an opportunity to unlock Kyle's voice with an Alternative Augmentative Device(AAC) called the DynaVox Xpress. We are eager to hear what Kyle has to say, what he is learning, what he wants to eat and what he doesn't like. Kyle's voice is on it's way and soon I will have a way to hear my son's words. Kyle's stubburn little brain is not going to win this battle. We are fighting a war that we will win and this is just one small victory to our battle with CAS.
2 comments:
I just sent you a blog award! Thanks for blogging and keep writing!
Take care,
Pattie
http://teachmetotalk.blogspot.com/2009/10/lemonade-blog-award.html
Apraxia is such a tough beast! Keep up the hard work- our Matthew two words (go and uh-oh) at 2 years of age, and only a handful at 2 1/2.
I hope you manage to obtain an AAC device without too much hassle! We did use some sign language with Matt (especially since Nolan is hard of hearing) and some picture boards we printed out and put on the fridge.
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